Courage World Tour - EU shows CANCELED

[scielle]

That's awesome! Are they generally able to afford that without going into debt?

 

I have no idea how people afford it… Lots of GoFundMe? But it only highlights how little is know about this disease. There are a handful of experts. Most patients complain that at their local hospitals they just get blank stares.

 

 

[Nmj]

CNN is reporting they have a “close source” to Celine saying she’s in “terrible pain” and doing “physical therapy daily” and will “never likely tour again”.

 

Has Claudette made the rounds again? Or is she finding out with us?!

 

https://www.cnn.com/2023/05/26/entertainment/celine-dion-tour-canceled

[sarit_celine]

^{The message left me very concered.}

[browseceline]

From what I read in her post she says even at 100 percent she will not be able to tour. And I understand. You cannot go anywhere in a plane when she has a stiffness attack. I think we will not see her touring again with a sickness like she has.

I am so sad this happened to her. Kind sweet funny and humble lady with the greatest gift and that is her enormous vocal talent. Of course in her position she has access to the best and most expensive treatments but it is a very unpredictable disease and there has not been a cure for it. Let us hope that everything will get better and I am still grateful to have seen her in concert multiple times. Just like Tina she is our icon! Hope she will find a way to live with this and who knows she will be able to sing for her fans - in any way - again. ❤️

 

 

Verzonden vanaf mijn iPad met Tapatalk

[scielle]

CNN is reporting they have a “close source” to Celine saying she’s in “terrible pain” and doing “physical therapy daily” and will “never likely tour again”.

 

Has Claudette made the rounds again? Or is she finding out with us?!

 

https://www.cnn.com/2023/05/26/entertainment/celine-dion-tour-canceled

 

Ugh.

I so hope she can somehow return to what she loves. Not for us as fans, but for her. 😔

[PuraVida]

There are a handful of experts. Most patients complain that at their local hospitals they just get blank stares.

 

It is so frustrating how often you read articles or watch videos about patients with rare/hard-to-diagnose illnesses, and they had to jump through so many hoops just to get a proper diagnosis. It even happens with somewhat more common things.

 

Not to mention how often doctors dismiss symptoms -- especially from women and people of colour.

Edited May 26, 2023 at 08:30 PM by PuraVida

[scielle]

CNN is reporting they have a “close source” to Celine saying she’s in “terrible pain” and doing “physical therapy daily” and will “never likely tour again”.

 

Has Claudette made the rounds again? Or is she finding out with us?!

 

https://www.cnn.com/2023/05/26/entertainment/celine-dion-tour-canceled

 

Similar sentiment here, from a Québécois music reporter, who feels her touring days are over, that perhaps she might be able to do a farewell concert at some point.

https://www.tvanouvelles.ca/2023/05/26/celine-dion-annule-ses-concerts-prevus-jusquen-avril-2024

No “source close to” but I feel like if we’re gonna get any updates at all in the coming months (years?), it’ll be Québécois journalists who uncover them.

 

Michel Drucker had this to say:

‘“Je n’ai pas eu Céline au téléphone depuis longtemps, elle a coupé avec tout le monde, y compris avec son entourage proche. Elle est dans sa bulle, vraiment. C’est compliqué, ce qu’elle vit. Je ne sais pas si elle reviendra, ça a l’air sérieux. Et les tournées marathons, planétaires comme ça, il faut être costaud. J’espère qu’elle rechantera car c’est sa vie”.‘

https://www.gala.fr/l_actu/news_de_stars/elle-a-coupe-avec-tout-le-monde-celine-dion-malade-son-ami-michel-drucker-na-plus-de-nouvelles_521505

Edited May 26, 2023 at 09:09 PM by scielle

[Alex_Incognito]

Ouf...painful what Michel Drucker said. So sad she's cut out everyone. Not just her fans.

[browseceline]

Can someone translate that article

 

 

Verzonden vanaf mijn iPad met Tapatalk

[PuraVida]

CNN is reporting they have a “close source” to Celine saying she’s in “terrible pain” and doing “physical therapy daily” and will “never likely tour again”.

 

Has Claudette made the rounds again? Or is she finding out with us?!

 

https://www.cnn.com/...n-tour-canceled

 

Well, CNN is way more reliable than lots of other places. But...hard to know, because this condition is so rare and unpredictable. I mean, who knows what medical advances can come up.

 

I speculate it'd be more accurate to say that a tour is too risky financially and health-wise to ever do again. Because she can't reliably fit the obligations of a huge investment.

 

No "source close to" but I feel like if we're gonna get any updates at all in the coming months (years?), it'll be Québécois journalists who uncover them.

 

But...has this been true up to now? As far as I know, since the pandemic started, the Quebec media hasn't uncovered anything quicker than anywhere else regarding Celine.

 

Can someone translate that article

 

The TVA one has nothing new. The Gala one just quotes Michel, who said recently: "I haven't had Celine on the phone for a long time, she has cut off with everyone, including with his immediate surroundings. She is in her bubble, really. It's complicated, what she's going through. I don't know if she will come back, it looks serious. And the marathon tours, planetary like that, you have to be strong. I hope she sings again because it's her life."

Edited May 26, 2023 at 09:37 PM by PuraVida

[comingback]

They are showing a Tina Turner concert on Arte right now. It's so sad that Celine is not able to go on Tour again. I always thought that she will be on stage until she is 70 or so, like Tina or Barbra. 😭

 

[scielle]

Javascript is not enabled OR refresh the page to view

Click here to view the Tweet

 

“When it comes to finding cures and better treatments for rare conditions like SPS, Newsome says it always “starts at awareness” and “making people aware of how disabling this condition can be.” To that end, he praises Dion for speaking out about her diagnosis and what she’s been going through.

 

“People are affected by this in different ways,” he says. “We’ve had some people who’ve been able to get back some normalcy, not perfect; I wouldn’t say that — at least the patients I’ve seen — that they get back to their pre-stiff-person baseline. I don’t know, for Celine, whether she’ll get back to performing like she did in years past. But I think with a combination treatment approach, that gives people the best odds to get back to a higher quality of life, even though it may be different. People can live with this disease.”

 

“I give her a lot of credit,” he says. “Given where she is in the limelight, it takes a lot of courage to come out with this.””

[PuraVida]

They are showing a Tina Turner concert on Arte right now. It's so sad that Celine is not able to go on Tour again. I always thought that she will be on stage until she is 70 or so, like Tina or Barbra.

 

Is it a widely available concert or a rarer one?

[scielle]

But...has this been true up to now? As far as I know, since the pandemic started, the Quebec media hasn't uncovered anything quicker than anywhere else regarding Celine.

I know… especially since she seems to have cut a lot of people out.

At least they’ve got Claudette…???

(Though seems Céline may have cut her out, too…)

 

[comingback]

 

 

Is it a widely available concert or a rarer one?

 

Tina Turner live in Rio 1988, it's also available on DVD

[mirage]

Getting this disease is a 1 in a million chance.

It would be crazy to think that she also would be the one who gets cured and be up and running and doing massive tours again.

 

I get we all need to be positive, but the celine touring days like we know them are over.

 

Back in the days it was René who once in a while let some information out through newspapers.

I guess this time we will know nothing for a long time.

 

It's a sad day, we knew it was the right and only choice. Now we just have to wait for whenever they choose to give an update.

 

Curious if that documentary is still going on.

That phone interview she held 2 years ago when announcing Las Vegas, she sounded so happy and alive. Crazy how it all changed.

 

If it wasnt for Covid we would have got an crazy world tour since TC.

 

[PuraVida]

I know… especially since she seems to have cut a lot of people out.

 

Yes, it appears that Denise is not totally far off about the isolation.

 

But I don't blame Celine. Facing an illness, especially one like this, it's not uncommon to pull up the drawbridge. For me, it's understandable. How someone deals with illness is completely up to them.

Edited May 26, 2023 at 10:11 PM by PuraVida

[homerton]

Celine will not perform again as we’ve known. This is often progressive. We may very well not hear from her in a long time. It may be years. If ever. We must face facts. In two years there’s been three short videos. Now nothing. It’s clearly not improving if they are cancelling a year off. Not negative. Just reality. Like my ms it is no fix. You learn to live a step at a time. And this seems worse. God bless her.

[Zofia]

So little surprise, so much sadness.

 

It’s so unfair of life – to rob a great singer of her voice, to rob a genius performer of the skill of her body. As if all her former life was suddenly reversed, reflected in a devilish mirror: where there was a crowd, there is loneliness, weakness replaces energy, rigidity replaces suppleness, pain replaces joy, fear replaces courage. Emptiness replaces the busy agenda, silence takes the place of music.

 

Personally, I hope she goes into remission, but I have very little hope that it will allow her to come back on stage. However, I strongly believe that at some point she will succeed in reinventing herself, in finding the means of expression that will be within her reach.

 

This disease is horrible and just the thought of how much it can hurt her, in body and in mind, is hard to bear. And at the same time it is impossible not to think about it. Because unlike other artists we admire from afar, we treat Céline as someone close, as if we were part of her family. This is perhaps one more facet of her genius...

 

I miss her terribly. It's going to be hard, this crossing of the desert. But... "You gotta pray just a little / Die just a little / To come alive in the right way"... Keep hoping.

[PuraVida]

 

This neurologist says it's not progressive. Elsewhere, it is described as being stable in some cases and gradually progressive in others. My takeaway is that it is not definitively progressive. The NORD website says: Stiff-person syndrome is considered by many researchers to be a spectrum of disease ranging from the involvement of just one area of the body to a widespread, rapidly progressive form that also includes involvement of the brain stem and spinal cord (PERM).

[scielle]

Yes, it varies wildly between people. Some respond to treatment and are able to function. Others have tried all available treatments and continue to suffer.

That girl from the People story is able to go back to school & play sports with regular IVIG treatments. On the other hand, someone I’ve been following on social media had a stem cell transplant something like 1.5 years ago and is still suffering and continues to use a wheelchair (albeit somewhat improved).

I know we’re not owed any details from Céline but oh how I wish we had some inkling of where she falls on the spectrum. I’m hoping the cancellation a year in advance was for abundance of caution and that she has somewhat improved/ responded to treatment, just not enough to go on tour in 3 months, and they decided the postponements and uncertainty aren’t helping anyone. Rip off the bandaid and reset. Come back to the public eye when she’s not just physically, but mentally ready. In whatever form that might be.

Anyway, we’ve posted a lot of research and papers re treatments in the SPS thread. (And by a lot, I mean what little is available, given how rare and poorly studied it is).

Edited May 26, 2023 at 11:44 PM by scielle

[scielle]

By the way, for those not reading the SPS thread but in need of some hope today, this is Darrell Cherry, writer of the https://thestiffman.com blog: https://www.instagram.com/p/CsnCPqgNrn6/?igshid=MzRlODBiNWFlZA==

 

He was diagnosed with SPS in 2020, relied on a walker & wheelchair as of 2021. He had the chemo & hematopoietic stem cell transplant in Feb-March as part of that Seattle/ Denver HSCT trial, and now he’s improved and able to walk with a cane, sometimes even unassisted.

 

 

[PuraVida]

I know we're not owed any details from Céline but oh how I wish we had some inkling of where she falls on the spectrum.

 

She mentioned she has trouble walking sometimes -- I wonder if that's because of affected leg muscles or because it affects her cerebellum. The neurologist in the video said that only happens in about 1 in 4 patients.

[scielle]

She mentioned she has trouble walking sometimes -- I wonder if that's because of affected leg muscles or because it affects her cerebellum. The neurologist in the video said that only happens in about 1 in 4 patients.

 

My understanding is mobility issues are a symptom of all forms of SPS - from classic (most common) to PERM (which is the form that affects the cerebellum).

 

Anyway, always following these two for all things Céline:

 

Javascript is not enabled OR refresh the page to view

Click here to view the Tweet

 

[Leite]

As everyone here I feel sad. I think everyone that follows Celine kind of expected this to happen. The tour had to be cancelled.I can also understand her wanting to isolate herself. Everyone that is going through a serious illness kind of feels the need to be alone and kind of think or rethink their life. Although her condition is serious, we all know that she will be able to have the very best of care. If there is a cure, she will for sure have access to it. She is a fighter by nature, and I think that's what she meant when she said she is not giving up. She has all the motivation she needs through her kids. I am sure they are giving her the will to fight.I was just thinking that it would be way easier for her to get through this if Rene were alive.I mean when he was sick she was there for him in every way. Now she needs to do this alone. Even so I am sure that she will come out of this well. We have all seen how determined she can be.And when she does find her way ,I am sure that she will still have her millions of fans to support her. As the song says:.let beauty come out of ashes.

[CelinesDIVO5]

As everyone here I feel sad. I think everyone that follows Celine kind of expected this to happen. The tour had to be cancelled.I can also understand her wanting to isolate herself. Everyone that is going through a serious illness kind of feels the need to be alone and kind of think or rethink their life. Although her condition is serious, we all know that she will be able to have the very best of care. If there is a cure, she will for sure have access to it. She is a fighter by nature, and I think that's what she meant when she said she is not giving up. She has all the motivation she needs through her kids. I am sure they are giving her the will to fight.I was just thinking that it would be way easier for her to get through this if Rene were alive.I mean when he was sick she was there for him in every way. Now she needs to do this alone. Even so I am sure that she will come out of this well. We have all seen how determined she can be.And when she does find her way ,I am sure that she will still have her millions of fans to support her. As the song says:.let beauty come out of ashes.

 

Celine has the focus of an athlete. When she learned English, she went to school for the amount of hours for a full time job every week. When she lost her voice, she stayed silent for as long as it took. Relying on tapping on the phone receiver in order to respond to yes or no questions. When she had that ear issue a couple of years ago. She took her time and recovered from it. I don’t feel her isolation is involuntary or even only medically recommended. It’s how she knows how to deal with things. She knows where she has to keep her focus.

[RosieBarron]

Not to be negative in any way, I do wish her all the best, but can you imagine the oposite: the statement saying: I have given up? No. She is not giving up on life and fight, but performing is probably out of the question for her in any future... Sad to say this, but its probably the truth. As someone stated before, she has (un)officially retired...

 

Sent from my SM-S911B using Tapatalk

 

That is very negative and the statement clearly suggests she may perform again.

[mb011]

Sorry, but no, it doesnt. Still wishing the future proves me wrong...

 

Sent from my SM-S911B using Tapatalk

 

 

[Macaronie]

You can say that again!

stahp 💀😂

[Geremy]

Now that the courage tour is officially over. I hope that if he will think of the fan with the DVD or digital version of one of the 2020 concerts