Céline has Stiff-Person Syndrome

[scielle]

Well, there are also comments like these: https://www.instagram.com/reel/C29XS4dM689/?igsh=MXZoYW8zdXR6MDhnZA==

Like anything, different opinions within the SPS community, too.

[Zofia]

Well, there are also comments like these: https://www.instagra...W8zdXR6MDhnZA==

Like anything, different opinions within the SPS community, too.

 

Sure. After all, as Céline aptly expressed it, it's not the disease that defines them.

 

As for the commentary itself, it rightly reminds us of the likely cost to Céline of such a public appearance, without her seeking, as usual, attempting to elicit sympathy. Though I will admit that explaining Swift's behavior seems a stretch to me, and probably comes from the damage-control implemented by her ultra-professional team; one can avoid hugs, but make eye contact and not leave out such an icon in her own speech.

[Nmj]

Well, there are also comments like these: https://www.instagram.com/reel/C29XS4dM689/?igsh=MXZoYW8zdXR6MDhnZA==

Like anything, different opinions within the SPS community, too.

 

I’m sure the triggers are different for every single person… I have to believe that if celine could have been triggered by these things, she would’ve not done it. so hopefully that means no triggers from any of those things. However, the person that posted that must be Taylor Swift fan… Nobody said Taylor had to even hug ,touch or kiss Celine but some simple eye contact and a smile would have been nice. I’m sure eye contact doesn’t isn’t a trigger.

[scielle]

I’m sure the triggers are different for every single person… I have to believe that if celine could have been triggered by these things, she would’ve not done it. so hopefully that means no triggers from any of those things. However, the person that posted that must be Taylor Swift fan…

She’s a caretaker for her husband, who has had very severe SPS for years. I’ve followed her for several months. It’s distressing…

 

 

Edited February 6, 2024 at 02:13 AM by scielle

[kaye2023]

I don't really have much to say on the TSwift faux pas. I don't "hate" her lol I just think it's embarrassing she behaved like a buffoon and I'm sure she regrets it in hindsight. However, excusing it as intentional so as not to trigger is ridiculous. There was already disrespect on-stage broadcast globally. Let's not extend the disrespect by attributing being deservedly ignored to her illness. It's an insult to why she was gracious enough to be there, and an insult to all patients suffering from SPS.

[jpatdeleon09]

Now, the swifties will use it as a defense. “SPS triggers by TOUCH, Light…”.

 

Still, a simple thank you or acknowledgment after receiving the award from Celine would have sufficed

[scielle]

Still, a simple thank you or acknowledgment after receiving the award from Celine would have sufficed

Exactly. Basic manners.

[catlovergirl1982]

Yes, I hear you (I mean I do not REALLY REALLY hear you but you get the point mean to say I understand what YOU are saying and where YOU are coming from). We all anticipate Celine would make her comeback and instead of that other people make their comebacks in this forum for instance (if you can get what I'm saying). Like when you expect money and life gives you s*** (you GET the picture I'm sure, nasty as IT IS). But you have a point (not that you're holding it or anything) but it's THERE I'd say, we probably attached so much meaning to these two appearances she made (not that there's ANYTHING wrong we being positive and hoping for the BEST) but you get me, girlfriend, when you hope for the BEST then you might end getting disappointed so it's best not to get the hopes high (NOT TOO HIGH at least, reasonably HIGH). Just the RIGHT amount of height... but at the end of the day it's all ok cause who knows what might happens, there's a mystery (NOT saying that's always good), but why not? Maybe 2024 is going to be super, maybe NOT. Celine has given us so much (not literally, figuratively) that we CAN wait more and we WILL wait more...!

 

Well I don't know what you mean by "other comebacks" at the beginnings of your post lol. Are you talking about Celine's previous comebacks? Because yes, while Celine has been on a hiatus before a few times, they were for DIFFERENT REASONS than what is happening now!

 

The first hiatus: was in 2000-2002 was when obviously because she wanted to "take a well deserved break" & try to have her first child. & We all know she did her first round of IVF, got pregnant & gave birth to RC in 2001, & around that time Rene was recovering from his first battle with cancer that started in 1999, (which we all know went into remission, but unfortunately came back years later.) Well that hiatus ended in 2002 with the release of the very lovely "A New Day Has Come" album, & her first Vegas residency "A New Day" started the following year, etc... Ok moving on...

 

The second hiatus: was in 2009-2011, after she had finished her hugely successful "Taking Chances World Tour" in 2009, she wanted to take another break "to sit on her eggs again" try to have another child. Which we also know that after several rounds of IVF & 2 VERY sad miscarriages, she finally got pregnant again & gave birth to the twins Eddy & Nelson in 2010. Then in 2011 she started her second Vegas residency "Celine" in 2011. Ok moving on...

 

The third hiatus: was in 2014-2015, & this one was NOT PLANNED, in either late 2013 or in early 2014 Rene was diagnosed with cancer again, & he got really sick from it this time around. So in 2014, Celine took a break to help take care of him when it became confirmed that Renes cancer was sadly terminal. So Celine obviously wanted herself & the boys to spend as much time with Rene as possible at this point. Then she did come back to performing in late 2015, just before Rene passed away in 2016. & except for briefly after Renes death where Celine took several days off to heal which we all understood, Celine had been back to performing straight threw, from 2016-2020, when the mess that was the awful Covid Pandemic happened, & she had to stop performing shows, just as what had happened to everybody else when the lockdowns happened. & the rest is history.

 

So my point is, yes all of those hiatuses happened for certain & important reasons, & some of them were out of Celine's control (such as Renes health & the Covid Pandemic.) But THIS HIATUS that is happening is NOT the same as the others! This time it is HER own health that she is battling. & Yes we all do wish she could be back on stage doing concerts again, & yes we know she wants that for herself as well.

 

But she is dealing with a DEBILITATING & INCURABLE DISORDER that has affected her health so much at this point as she has had to cancel all of her show during the past 4 years! As much as we all want to have hope & faith for her, we all need to be realistic & face the facts that one-off appearances, such as the ones she has made in recent months including at the Grammys last night, might be the norm for Celine from now on, & her days of 2-hour concerts, tours, Vegas residencies, etc are most likely over. We should be happy with what Celine is able to give us, & not expect her to give us everything as if she is not sick! Now her so-called social media "team" is a DIFFERENT STORY! Even if Celine is not performing concerts, they can still have posts alot of often than they do (& maybe hopefully if Celine can not handle live shows, maybe she can also film brief 5-10 minute videos for her "team" to post on social media to let us all know she is still living. Just an idea lol.

Edited February 6, 2024 at 06:37 AM by catlovergirl1982

[ryba]

Lol this SPS excuse is simply ridiculous. Saying thank you and looking at her wouldn’t have triggered SPS. Taylor Swift just acted like an idiot. There is no excuse for it.

[catlovergirl1982]

 

 

I totally think the opposite.

 

We are not in Céline's mind. Her sickness is not a back pain or something, this is a long-term uncurable disease. This is a new situation and therefore I don't understand how one could be so definitive about how she would react.

 

 

In case she can't sing or perform anymore, you are suggesting that her life is done then? So she would rather stay home for the rest of her life than enjoying what life has left for her for the next 30 years?

 

This is currently a lifetime illness. So if she is not able anymore to be on stage, she would restrain herself to go out for the sake of people on top of it ? Why not commit suicide then?

 

Again this is not a cold, this is a serious disease and just like anyone else - and this is TOTALLY normal - when your whole life is at stake, you choose yourself over people and what they think of you.

Not enjoying a night out won't bring her on stage anyway...so why bother?

 

Your speech is kind of pressuring actually. I hope she doesn't read this board lol

 

Of course, I hope she will be back soon.

 

 

She cancelled everything, so no commitment to none whatsoever. Like everyone already said, she has the right to enjoy life because that good health might not be permanent.

The fact that she made public appearances without making a video to us fans means that her struggle with SPS is not 100% under control and she won't go on camera telling you because you saw me at the KP concert enjoying life, I owe you a concert series. It might not be black and white and she might be still struggling behind the scenes with her condition on and off.

 

 

Exactly. She makes two appearances and suddenly people think she’s gonna announce a residency. Incredible.

 

It’s less than 6 months since she cancelled everything. She was still meant to be doing the “Courage World Tour” up until April 2024 and obviously that’s cancelled.

 

Could she, you know, just have wanted a night out?

 

OMG EXACTLY!! See I am not the ONLY FAN who understands the situation with Celine's health! I am not the ONLY FAN who is not expecting poor Celine to "announce a new tour ANY DAY NOW", or "announce a new Vegas residency ANY DAY NOW" even though she is currently battling a PROGRESSIVE & INCURABLE DISORDER that has already caused her to cancel all of her shows last year!

 

As much as yes, I wish & hope for a miraculously recovery & that Celine would come back to performing like she used to. But we all might have accept that the days of Celine doing 2-hour concerts, any massive tours or massive residencies in Vegas, any big projects like that, ARE OVER! & it will hurt a lot for all of us fans, I know it will hurt that I never got see her in concert & the closest to me for being "at a Celine Dion concert" will be watching Youtube videos from fan recordings from cell phones from previous shows.

 

But this is not an illness that will "magically disappear & miraculously be cured", this is a disorder that Celine will be dealing with for the rest of her life, in the very best way as she possibly can that her body will allow her to. So if that means she is only possibly able to do 5-15 minute or whatever small type of appearances, such as the Grammy awards last night, & the appearances at the hockey game & at the Katy Perry show from last year, then we have to accept be happy & grateful for that, & for her to be able to still do that. & also not to expect that if she makes these appearances, that we should expect concerts, tours, residencies, etc & say crap like "if she was not able to perform concerts anymore, she should stay home & never go out again" - WTFFFF I could not believey eyes reading that from a few months back after her previous appearances. & I do agree 100% with the fan who said that "Celine should just be able to enjoy nights out & enjoy life even if she is not able to sing or perform concerts ever again, she should still be able to make appearances & enjoy life without feeling bad about not performing." & You are right on about that, I do Celine should enjoy life & go out if she is able to & not be stuck in her house 24/7 even if she can no longer do concerts.

 

I mean look at other people out there who had to also retire from their careers to a point, but still like to go out with family & friends & enjoy their lives as long as their health allows them to do so. Ask Michael J. Fox & Linda Ronstadt & Julie Andrews what they all think about this as well, since all of them had to retire from their careers due to health issues, but all of them are still enjoying their lives instead of being stuck in their homes 24/7 just because they can no longer sing, perform concerts, film movies, or film television shows, etc... I would think Celine would want to enjoy life as well, & would not to be stuck at home 24/7 & still want to have experiences with her boys, family, & friends while her health will allow it. After all, life is too short & unpredictable at times. Honestly, tomorrow is not promised to any of us on this earth, any person, animal, plant, etc tomorrow is not promised! Sorry if this is confusing, this is my first nulti-quote posting lol! Even though the posts are not very recent in this thread, I think they all prove VERY GREAT POINTS when it comes to discussing Celine's current health battles with SPS & what all of us WILL HAVE TO START FACING whether we want to or not.

Edited February 6, 2024 at 08:32 AM by catlovergirl1982

[scielle]

Inside Céline Dion's Emotional Grammys Comeback: 'Gracious' Oprah, René-Charles All Grown Up and More (Exclusive)

 

"It was an amazing night for her. She's doing well, and the hope is that she can continue to do more and ease back in," says the source of Dion.

 

[in the doc] "People will see everything she went through," says the source, who adds Dion is looking forward to leaning back into her music career this year. "She's taking things step by step. [Her illness] is incurable, but she's honestly doing well and looks incredible."

 

"Everybody was stopping her. She had a beautiful moment with Oprah and sang with Stevie Wonder. They were just riffing," says the source. "Victoria Monét also stopped her. Everyone was so gracious."

 

 

(Lovely to hear about the Stevie moment. After all, he was her first concert, right? Where she sat in the last row, at Place des Arts, because that's all she could afford at the time?)

Edited February 6, 2024 at 12:33 PM by scielle

[comingback]

Inside Céline Dion's Emotional Grammys Comeback: 'Gracious' Oprah, René-Charles All Grown Up and More (Exclusive)

 

"It was an amazing night for her. She's doing well, and the hope is that she can continue to do more and ease back in," says the source of Dion.

 

[in the doc] "People will see everything she went through," says the source, who adds Dion is looking forward to leaning back into her music career this year. "She's taking things step by step. [Her illness] is incurable, but she's honestly doing well and looks incredible."

 

"Everybody was stopping her. She had a beautiful moment with Oprah and sang with Stevie Wonder. They were just riffing," says the source. "Victoria Monét also stopped her. Everyone was so gracious."

 

 

(Lovely to hear about the Stevie moment. After all, he was her first concert, right? Where she sat in the last row, at Place des Arts, because that's all she could afford at the time?)

 

+ his album Hotter Than July was the first album she bought.

Edited February 6, 2024 at 12:53 PM by comingback

[Nmj]

Inside Céline Dion's Emotional Grammys Comeback: 'Gracious' Oprah, René-Charles All Grown Up and More (Exclusive)

 

"It was an amazing night for her. She's doing well, and the hope is that she can continue to do more and ease back in," says the source of Dion.

 

[in the doc] "People will see everything she went through," says the source, who adds Dion is looking forward to leaning back into her music career this year. "She's taking things step by step. [Her illness] is incurable, but she's honestly doing well and looks incredible."

 

"Everybody was stopping her. She had a beautiful moment with Oprah and sang with Stevie Wonder. They were just riffing," says the source. "Victoria Monét also stopped her. Everyone was so gracious."

 

 

(Lovely to hear about the Stevie moment. After all, he was her first concert, right? Where she sat in the last row, at Place des Arts, because that's all she could afford at the time?)

 

I know People is a respected magazine but I hate when they say “a source says”…. Who’s the source? I do like they said the plan is to keep easing into public life again. I know some people may disagree but I’d love to see Celine along side Reba on “The Voice”, I think she’d be very good at coaching new talent and it could be a gradual return, the coaches also perform on the show with each other a few times during the season. A great way to get her feet wet again, if she’s gonna return to the stage.

[felicia]

I’ve learned from popculture podcasts that when People mag talks about sources it’s most of the time someone from the team with the blessing from that person

 

 

I know People is a respected magazine but I hate when they say “a source says”…. Who’s the source? I do like they said the plan is to keep easing into public life again. I know some people may disagree but I’d love to see Celine along side Reba on “The Voice”, I think she’d be very good at coaching new talent and it could be a gradual return, the coaches also perform on the show with each other a few times during the season. A great way to get her feet wet again, if she’s gonna return to the stage.

[LukeD]

Well I don't know what you mean by "other comebacks" at the beginnings of your post lol. Are you talking about Celine's previous comebacks?

No! Give it ANOTHER trY please!!1!!1!

[catlovergirl1982]

No! Give it ANOTHER trY please!!1!!1!

 

What do you mean by giving it "a try"? Wth are you talking about? Lol **Scratching head** **confused look lol**

[idroveallnight]

Now, the swifties will use it as a defense. "SPS triggers by TOUCH, Light…".

 

Still, a simple thank you or acknowledgment after receiving the award from Celine would have sufficed

 

or the excuse that Celine has a no touch clause. Wtf? Didn’t TS lean all her body weight on her in that backstage photo?

[québecflower]

or the excuse that Celine has a no touch clause. Wtf? Didn’t TS lean all her body weight on her in that backstage photo?

almost like the drunk lady at the colosseum

[scielle]

or the excuse that Celine has a no touch clause. Wtf? Didn’t TS lean all her body weight on her in that backstage photo?

Did she have a “no eye contact” clause, too? 🙄

[catlovergirl1982]

 

Sometimes it feels like some of you think she is recovering from a cold or something.

 

 

Verstuurd vanaf mijn SM-F721B met Tapatalk

 

Hey don't ya know that Celine "has made it all up about suffering from SPS" & that she "made up having SPS so that she could hide a pregnancy or is trying to get out of a contract/deal" lolllll. 🙄🤣

 

& Most of us fans know better! Seriously, we all know Celine would NEVER make up something like that! & a pregnancy at almost 56 years old?! If anybody believes that bs, I've got a bridge to sell them with a pretty shiny purple unicorn flying over it & a huge pot of gold sitting at the end of it lol... & as far as that contract/Rob Prinz deal thing, that was already settled & dismissed a few years back, so that whole situation is totally under the bridge now (no pun intended lol.) Whether we want to accept or not at this point, Celine has SPS, it is a VERY real disorder & there is nothing anybody can do to change any of that.

[catlovergirl1982]

I’m not letting go of my optimism just yet. Knowing Céline, she must be feeling incredibly bad thinking that she has disappointed millions of people around the world, including her fans, her employees, label execs, Resorts World execs, etc. Not to mention her contractual obligations. There is no way in hell she would allow people to see her enjoying herself (certainly not dancing in the RW theater) if she was not planning an imminent return to performing. Other artists might, but with Céline it’s simply unimaginable. She would prefer to stay hidden at home, even if it meant she couldn’t fully enjoy everything she is able to do.

 

Wow so, you really think that Celine would rather "stay home for the rest of her life if she is not ae to do concerts or tours anymore"?? REALLY WTFFFFF!!

 

Wow thank God that Celine & her team DO NOT most likely read or even know this forum exists! Because that statement you wrote right there would put sooo much extra GUILT on her for ot be able to sing or do concerts right now (or possibly ever again) because of her health battles.

 

& I am not saying that I don't wish for her to back to singing & performing again. Of course I do want that just like everybody else does!

 

But even if singing & performing on stage/tours/residencies, etc all might be definitely out of the cards for Celine down the road, I would really hope that she could still ENJOY LIFE & be able to make more appearances over the years like she has recently (appearances that are short & small where she can take frequent breaks in between for the benefit of her health.) Appearances such as presenting awards, attending other people's concerts, sport games & other live events, being a guest on TV talk shows/sitcoms, or maybe even making small videos at home & uploading to YouTube & her social media pages (which is something her team was SUPPOSED to be doing since the pandemic like pretty much everybody else is doing! Even though there are no concerts, tour, residencies, etc from Celine these days, her "Team" could still be more PROACTIVE with her social media pages & updating than MORE OFTEN than they do, instead of going MONTHS & MONTHS without posting like they have been doing for a while now!

 

But I really do hope that with all of the treatments & medications & whatever else she is trying to do to get better enough to be able to function normally, can help her to have a lot LESS PAIN & MORE COMFORT, so that she can ENJOY LIFE & be able to go places with her boys, family, & friends, & to not be atuck at home 24/7! Seriously what kind of life that is, to be stuck at home 24/7 & not be able to enjoy life & interact with the world? Of course Celine wants to still be able to be out in the world even though she has a physical disability now. & I think she should NEVER feel guilty for being out there in the world even though she can no longer do concerts or touring, she has cancelled all of her shows at this point, & most of us fans, as well as most of the general public, will understand & do understand the circumstances she is in & support her all the way!

[scielle]

Well, baby steps, but it’s translating into donations - https://www.facebook.com/share/p/VdjKZ4pbVJAb8Hj7/?mibextid=WC7FNe Edited February 8, 2024 at 01:51 AM by scielle

[kaye2023]

I clicked on page 1 of this thread by accident and saw the SPS announcement vid again... did a double take because I was thinking Céline gained good weight in the Grammys appearance, but compared to just a year before, I'm surprised to realize she actually lost weight, no?

 

Being sick is tedious. Blargh.

 

 

Dec 2022

 

 

 

Jan 2024

 

 

Edited February 9, 2024 at 05:18 AM by kaye2023

[Nmj]

I clicked on page 1 of this thread by accident and saw the SPS announcement vid again... did a double take because I was thinking Céline gained good weight in the Grammys appearance, but compared to just a year before, I'm surprised to realize she actually lost weight, no?

 

Being sick is tedious. Blargh.

 

 

Dec 2022<p>

 

It’s hard to tell. She’s looks healthy to me… but you have to realize a lot of the weight gain could’ve been from certain medications and or treatments Celine is receiving/received. We also know now, that Celine is also out and about more often now, we are actually seeing her… presumably more movement/ etc.

 

 

Edited February 9, 2024 at 05:23 AM by Nmj

[kaye2023]

It's hard to tell. She's looks healthy to me… but you have to realize a lot of the weight gain could've been from certain medications and or treatments Celine is receiving/received. We also know now, that Celine is also out and about more often now, we are actually seeing her… presumably more movement/ etc.

 

Yes, I didn't mean to imply her weight indicates if she's currently healthy or not. Was just surprised to realize the weight loss, I guess (granted, I only infer weight loss due to the lines around the eyes and mouth, especially the chin line, which appear more pronounced whenever she's lost weight in the past).

[jpatdeleon09]

I clicked on page 1 of this thread by accident and saw the SPS announcement vid again... did a double take because I was thinking Céline gained good weight in the Grammys appearance, but compared to just a year before, I'm surprised to realize she actually lost weight, no?

 

Being sick is tedious. Blargh.

 

 

Dec 2022

 

 

 

Jan 2024

 

 

 

Don’t be fooled with the angle because in the video in grammys she looked the same but in the pictures it’s like it was elongated/stretched that’s why it looks thinner

 

It’s the lens. I prefer the video than the lens of phones

Edited February 9, 2024 at 06:27 AM by jpatdeleon09

[Zofia]

It's probably not so much weight loss as less (or no) steroids in the current protocol; before that, she had a characteristically steroid-rounded face.

[Lindaaa]

It's probably not so much weight loss as less (or no) steroids in the current protocol; before that, she had a characteristically steroid-rounded face.

Agree. And besides that I guess a different hairdo (and make up) could influence some of this difference too

 

Verstuurd vanaf mijn SM-G990B2 met Tapatalk

 

 

[scielle]

She looks so healthy and happy in that Oilers video!

Of course, people with SPS are often faced with “you don’t look disabled” comments when in reality they’re going through tremendous pain… we don’t know what’s going on underneath.

But the mere fact that she’s out in public more and more often and seemingly handling all the stimuli, that can only mean good things.

Yay!

[GoldenLeaf]

 

 

or the excuse that Celine has a no touch clause. Wtf? Didn’t TS lean all her body weight on her in that backstage photo?

LOL! Exactly! That backstage photo is the proof that TS fans excuses are just BS.

 

As for the noises/lights sensibility that SPS people usualy have, clearly Celine doesn't have sensibility problem with these otherwise she wouldn't have attended the Grammy Awards, the Katy Perry concert and those hockey games.

Edited February 10, 2024 at 07:09 PM by GoldenLeaf