Céline has Stiff-Person Syndrome

[CelinesDIVO5]

 

 

Yeah, I was so enthralled by the video for "Imperfections" that I grew to like the song itself out of momentum Her look in the end of the clip grabs me every time. There's something going on there, without words, that you write about, which is hard to name, but which fascinates me about her too: a confidence that isn't egotistical or narcissistic, and an honesty or even truth, in the midst of fashion-theater poses and dress-ups. Some very much her "I play, but I don't lie." Goldman once said of her, "Cette fille ne triche pas." I like this sentence.

 

I wondered, by the way, how it happened that she gained this admirable confidence and harmony with her own body as she got older, despite the complexes of her youth that she talked about so many times. Usually at such times, I guess what pays off the most is what we got from our parents in childhood? I'm also impressed by the kind of simplicity and humility in the face of life with which she always referred to the most difficult experiences - illness, death, bereavement. It seems that this is not a common attitude in her social class... And I am very much looking forward to her reflection on what happened in the last years of her life. May she be able to both talk about it and sing about it.

 

I honestly think fashion gave her a lot of confidence in her body.

[scielle]

Usually at such times, I guess what pays off the most is what we got from our parents in childhood? I'm also impressed by the kind of simplicity and humility in the face of life with which she always referred to the most difficult experiences - illness, death, bereavement. It seems that this is not a common attitude in her social class...

 

I think some of that may have to do with her family, and he sheer size of it. She has seen and experienced a lot just in her immediate circle, so these things, and dealing with them, are not abstract to her. I mean, she has seen one niece die of cystic fibrosis at 16, and a nephew become wheelchair bound after a ski accident. Another niece just died in a car accident. And those are just some examples we're aware of. In such a big family, there's bound to be a breadth of life experience.

While she's clearly closer to some of the siblings than others, I'm sure she was always there for all of them in an hour of need, be it financial or emotional. And by virtue of that experience I don't think she'd ever have a "woe is me" attitude and wallow in self-pity, because she knows many people deal with a lot of hardship without the kind of resources and support she has at her disposal.

Of course, one can't dismiss how hard it must be to deal with a life-changing diagnosis no matter who you are, when you know life is never going to be what it was before. But I think she's someone who's able to have perspective.

Edited March 1, 2024 at 01:27 PM by scielle

[Zofia]

I think some of that may have to do with her family, and he sheer size of it. She has seen and experienced a lot just in her immediate circle, so these things, and dealing with them, are not abstract to her. I mean, she has seen one niece die of cystic fibrosis at 16, and a nephew become wheelchair bound after a ski accident. Another niece just died in a car accident. And those are just some examples we're aware of. In such a big family, there's bound to be a breadth of life experience.

While she's clearly closer to some of the siblings than others, I'm sure she was always there for all of them in an hour of need, be it financial or emotional. And by virtue of that experience I don't think she'd ever have a "woe is me" attitude and wallow in self-pity, because she knows many people deal with a lot of hardship without the kind of resources and support she has at her disposal.

Of course, one can't dismiss how hard it must be to deal with a life-changing diagnosis no matter who you are, when you know life is never going to be what it was before. But I think she's someone who's able to have perspective.

 

True, multiple siblings increase your life experience, although it doesn't determine what you do with that experience. We know people who come from large families who are tightly focused on their own needs, and we know empathetic only children. But perhaps, in fact, her sense of debt and bond with her older siblings helped her not lose touch with reality, despite her living in such isolating luxury. As Jacques Dion said in September for Le Figaro: “Celine is very lucid and refuses to complain. As she says, I am surrounded by the best doctors and many others are not so lucky.”

 

It will be interesting to see how it will be with her sons - unlike Céline, they did not experience any material constraints in their childhood and grew up pampered like princes, while on the other hand they had to confront the dramatic dimension of life very early: not only did they lose their father early, but they witnessed his long dying, and now they are watching their mother's incurable illness up close. How will this shape them?

[PuraVida]

She's always been wise and beyond her years from an early age. There are countless quotes one could choose from her interviews over the decades that show she is a woman with perspective on life. I have no doubt that her character is helping her in this very tough battle she's facing, particularly on the mental side of things.

 

As for her body, I think once she became a woman (and fixed her teeth), she was solidly confident. And it didn't take long after her career got started in French for her to have enough money to buy beautiful clothes that could only help with her confidence. And we fans remember how she was willing to show body in the early 90s too.

[Zofia]

She's always been wise and beyond her years from an early age.

 

I'll say something unpopular: over time, I've learned to be wary of children who are "wise beyond their years." - It's usually much healthier for children not to get wise prematurely, but in accordance with their age. It's a bit like the immune system: the common perception is that it needs to be constantly "boosted," meanwhile it's much better when it stays in balance, because we know what happens (and which is the topic of this thread) when it reacts too strongly.

 

Certainly, children from poor families, who suddenly start earning more than their parents, are quickly confronted with adult responsibilities and problems. But they lose something important.

 

As for her body, I think once she became a woman (and fixed her teeth), she was solidly confident. And it didn't take long after her career got started in French for her to have enough money to buy beautiful clothes that could only help with her confidence. And we fans remember how she was willing to show body in the early 90s too.

 

Yes, this is certainly not a matter of recent years, but a postponed realization of needs she has felt for a long time. Had she decided for herself, her repertoire and image since the 1990s would probably have been sharper, bolder and more extravagant - but René and a couple of show-biz professionals decided years ago that she would sell better as a mainstream, controversy-avoiding performer of power ballads about love, with a target audience of conservative house-wifes...

[Davey84]

Apparently she's in New York?? Check those heels!!

 

Verstuurd vanaf mijn SM-G781B met Tapatalk

 

 

[homerton]

She looks frail in that picture. Think it’s the angle. Hope she’s doing an interview. Be fantastic.

[Nmj]

She looks frail in that picture. Think it’s the angle. Hope she’s doing an interview. Be fantastic.

 

Nobody looks strong with one foot in the air getting into a SUV. it’s definitely the picture at a not so great moment.

Edited March 8, 2024 at 11:00 PM by Nmj

[joaofilho]

[

 

 

Sony legacy, Colombia, Amazon all making a post

[No1IrishFan]

[

 

 

Sony legacy, Colombia, Amazon all making a post

 

I can’t see a Columbia or Amazon post. Are they recent?

 

[Nmj]

[

 

 

Sony legacy, Colombia, Amazon all making a post

 

What?

[comingback]

I can't see a Columbia or Amazon post. Are they recent?

What?

 

 

They posted about the Women's History Month.

[scielle]

[

 

Sony legacy, Colombia, Amazon all making a post

 

And? What’s the takeaway/ relevance to SPS?

[Nmj]

 

 

And? What’s the takeaway/ relevance to SPS?

 

I was confused

[comingback]

 

https://www.youtube.com/watch?v=0oRuFY_GYxM

 

 

I think she will be on GMA on Friday (SPS Awareness Day). They reported about Celine and SPS last time.

Edited March 10, 2024 at 08:44 AM by comingback

[jpatdeleon09]

Most celebs looks frail without a makeup more when in 50s

[scielle]

One recent photo from the Vegas locker room also shows a small bulge under her clothing below her left breast, shaped like a baclofen pump, which is not uncommon for SPS patients, but again - it is usually placed lower and more to the side. Mayby it is just a fold of clothing.

 

The most recent video from that locker room meetup suggests it was just a fold of clothing. And she certainly looked to be the same old, high energy, commanding-the-room Celine.

That video, coupled with the latest NYC pics/video, suggests she’s really doing quite well. Or at least well enough to do a multi-day cross-country trip for professional engagements, something she was unable to do 10 months ago for LA promo. All good signs.

[RosieBarron]

 

 

The most recent video from that locker room meetup suggests it was just a fold of clothing. And she certainly looked to be the same old, high energy, commanding-the-room Celine.

That video, coupled with the latest NYC pics/video, suggests she’s really doing quite well. Or at least well enough to do a multi-day cross-country trip for professional engagements, something she was unable to do 10 months ago for LA promo. All good signs.

 

It does feel like some people are really over analysing everything. I don't find all the speculation about her potential treatment that helpful.

[stevo]

Especially when we’ve had no indication that she’s ever been completely incapacitated or bed-bound. She seems to be doing well, and all the pictures we’ve seen of her since her telling us of the diagnosis gives us nothing but a positive outlook. Can’t wait until she’s back on stage high kicking the crap out of I’m Alive

[Nmj]

Especially when we’ve had no indication that she’s ever been completely incapacitated or bed-bound. She seems to be doing well, and all the pictures we’ve seen of her since her telling us of the diagnosis gives us nothing but a positive outlook. Can’t wait until she’s back on stage high kicking the crap out of I’m Alive

 

I would’ve thought the days of the power ranger high kicks are done…. But then again I didn’t expect to see her walking in heels either and that already happened.

 

I personally, don’t think she was ever bed ridden or wheel chair bound. It makes a difference when Celine has this condition when she doesn’t have to go to work the normal 9-5, she has the luxury to stop all together and not worry about money just because of a common cold.

[PuraVida]

There was more video of her at that hockey game, and she was very expressive with her body. That was encouraging to see.

[scielle]

There was more video of her at that hockey game, and she was very expressive with her body. That was encouraging to see.

 

Yeah, that’s the one I was referring to in my post above, the one from that Oilers subscriber show.

 

But, I think we need to remember that her “job” is not like others. Many people with SPS have to quit regular desk jobs because of the disability. The SPS foundation founder was a dentist, and she had to leave the profession. Obviously that’s a physical job, but not nearly as physical as Celine’s. Performing, rehearsing, touring… all of that is physically very demanding and I’m sure exhausting for anyone, never mind a 56-year-old woman with SPS. Plus of course SPS affects breathing, too, and clearly Celine needs her, lungs, diaphragm, etc to be top-shape more than most.

 

[PuraVida]

Performing, rehearsing, touring… all of that is physically very demanding and I'm sure exhausting for anyone, never mind a 56-year-old woman with SPS. Plus of course SPS affects breathing, too, and clearly Celine needs her, lungs, diaphragm, etc to be top-shape more than most.

 

True, being out and about occasionally is one thing. But singing -- singing well, and at Celine's standards -- is an entirely different kettle of fish. She sounded quite good backstage at The Grammys, but obviously her typically workday before involved hours of singing. Who knows how close to her top shape she can reach vocally with her condition even on a good day, let alone the issue of sustaining it.

 

That said, compared to the not so distant times where we had zero ideas about how Celine looked or was doing, the recent appearances are INCREDIBLE

[Nmj]

 

 

Yeah, that’s the one I was referring to in my post above, the one from that Oilers subscriber show.

 

But, I think we need to remember that her “job” is not like others. Many people with SPS have to quit regular desk jobs because of the disability. The SPS foundation founder was a dentist, and she had to leave the profession. Obviously that’s a physical job, but not nearly as physical as Celine’s. Performing, rehearsing, touring… all of that is physically very demanding and I’m sure exhausting for anyone, never mind a 56-year-old woman with SPS. Plus of course SPS affects breathing, too, and clearly Celine needs her, lungs, diaphragm, etc to be top-shape more than most.

 

Either way It’s progress as you alluded to in a previous post. For “Love Again” less than a year ago , she was either unable or not wanting to participate in any promotion… not even a filmed message. That means progress has been made, the extent of how much.. is unclear and hopefully the documentary explains that time frame and what’s happened since for more prospective. I really do wonder if Celine participated in some experimental treatments in that time frame and was on immune system “rest”. Also, noted that at the Katy Perry concert and both hockey games, Celine had a mouth mask around her wrist… I’m sure a precaution but we never see her actually wear it.

 

[CelinesDIVO5]

 

 

I would’ve thought the days of the power ranger high kicks are done…. But then again I didn’t expect to see her walking in heels either and that already happened.

 

I personally, don’t think she was ever bed ridden or wheel chair bound. It makes a difference when Celine has this condition when she doesn’t have to go to work the normal 9-5, she has the luxury to stop all together and not worry about money just because of a common cold.

 

We also don’t know how long she has been dealing with symptoms. She may very well have been feeling the effects of SPS even while on tour…and she would still do high kicks and that wacky dance she would do during the intro of “You’re The Voice.” We don’t yet know (if ever) what treatment she has received, or what she will be capable of going forward.

[stone]

Céline is still in Boston and will be at Berklee recording tmw. Her security team is sweeping the entire building today!

[ryba]

Céline is still in Boston and will be at Berklee recording tmw. Her security team is sweeping the entire building today!

what will be recorded? Do you know?

[stone]

what will be recorded? Do you know?

 

My friend is a faculty member. I’m begging for a vip pass!

[Nmj]

 

 

My friend is a faculty member. I’m begging for a vip pass!

 

I hope you can get in!!

[karatedude317]

Is it something for SPS day?