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Céline has Stiff-Person Syndrome


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Posted

It’s lovely just to imagine her voice as she says this.

 

‘One day get back onto the stage’ makes me think that it isn’t any immediate time soon

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Posted (edited)

Ah, but has she experimented with editing? 😜

 

Kate jokes aside, so glad to see this from her. “One day” sounds far off and uncertain, but it’s good to know she seems to be back to having a more public profile and a post like this, from her, really matters. And I believe it’s the first time we’re told when she was actually diagnosed.

 

A number of media outlets picked up on this already - Hollywood Reporter, People, among others - despite it being late Fri night.

https://www.hollywoodreporter.com/news/general-news/celine-dion-shares-message-stiff-person-syndrome-awareness-day-1235853981/

https://people.com/celine-dion-poses-with-sons-on-stiff-person-syndrome-awareness-day-8610153

 

Edited by scielle
  • Like 1
Posted
Ah, but has she experimented with editing?

 

Kate jokes aside, so glad to see this from her. One day sounds far off and uncertain, but its good to know she seems to be back to having a more public profile and a post like this, from her, really matters. And I believe its the first time were told when she was actually diagnosed.

 

A number of media outlets picked up on this already - Hollywood Reporter, People, among others - despite it being late Fri night.

https://www.hollywoodreporter.com/news/general-news/celine-dion-shares-message-stiff-person-syndrome-awareness-day-1235853981/

https://people.com/celine-dion-poses-with-sons-on-stiff-person-syndrome-awareness-day-8610153

It's her drive to be on that stage again one day.

 

She could easily say, nevermind I'm not doing this anymore.

I do wonder if maybe she's still a bit in denial, is it the company that wants to keep us in the dark about her on stage career until they absolutely certain it's a no or a yes.

 

So many questions. We just need that documentary. :giggle:

 

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Posted
Such a good message from Celine. ‘One day’ sounds so far away, hope she will succeed. She is being missed on stage, it has been four years since her last concert, hope for us and especially Celine it won’t stay her last concert.
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Amsterdam 18-06-1997 - Amsterdam 14-06-1999 - London 10-07-1999 - Antwerpen 14-05-2008 - Antwerpen 21-11-2013 - Las Vegas 10-10-2015 - Paris 09-07-2016 - Arnhem 23-06-2017

Posted
It's a good message for the SPS Awareness Day and the family photo is great. And yes "one day" sounds far away...
Posted (edited)
At the same time she’s hardly going to announce a comeback on SPS day… but it’s a lovely message! :) Edited by Shamrock_1982
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Posted
I think you guys are reading too much into the “one day” comment. Even if she has a return this year in the pipeline, that’s months off, how else would she phrase it?
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Posted

I just love how some good came from this terrible diagnosis Celine has… if you’d like to go down the “rabbit hole” and have some free time, check out the some instagram comments on her latest post; so many people with SPS thanking Celine for bringing more awareness even saying things like how they finally feel “seen during this isolating experience” and that to “stay strong , it gets better”, it’s awesome to see!

 

 

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Posted

I think you guys are reading too much into the “one day” comment. Even if she has a return this year in the pipeline, that’s months off, how else would she phrase it?

 

How about: as soon as possible...

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Posted

 

 

How about: as soon as possible...

 

Again, I think y’all reading too much into it. Do I need to remember everyone about how many times the Courage Tour was delayed first due to covid then her illness. Celine is being political with that term, also, I’m sure we will see on the documentary more about the stage return one day… yesterdays pos, served its purpose. I wonder if her PR real had to remind her of the day being SPS awareness day…. They posted it at 11:30 pm EST… they almost never post that late.

  • Like 1
Posted

So this is it? Just one post on her Social Media?

 

What do you mean? A post on her social media as opposed to… what?

 

It’s nice to see so much coverage of it in a plethora of outlets, not just entertainment press (though some have gone a bit far… like Variety Fair with a “Celine Dion Announces Surprise Plan to Return to Stage” title… really? 🙄 Anything for clicks, I guess.)

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Posted (edited)

 

 

What do you mean? A post on her social media as opposed to… what?

 

It’s nice to see so much coverage of it in a plethora of outlets, not just entertainment press (though some have gone a bit far… like Variety Fair with a “Celine Dion Announces Surprise Plan to Return to Stage” title… really? 🙄 Anything for clicks, I guess.)

 

Whoever wrote that should be fired…just for saying that she “announced” a “surprise” return.

 

I didn’t know you “announced” a surprise . :sofunny:

Edited by Nmj
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Posted
After seeing her out and about I was hoping for a tv appearence
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post-5889-0-11519200-1681245149_thumb.jpg

Posted

After seeing her out and about I was hoping for a tv appearence

 

The question still remains what was she doing in NY and Boston?

 

The only solid info we have is that Celine dinned at a Boston restaurant. Otherwise, we don’t have a clue as to what Celine was doing in either City other than the Berklee speculation we heard from a member here, that has since disappeared. So it seems to be a professional gig, because Shari and Dee were in NYC with her but for all we know it could just be a girls trip for them and maybe they’ve become a close small group of friends. Time will tell.

 

 

Posted
I can’t see there being any shows for a long time. I suspect she’s not given interviews yet as the documentary will be the big one. She’s doing better but it’s a long long process.
Posted (edited)

This young lady commented under Celine’s SPS post yesterday, she’s a fellow sufferer of SPS. She chronicles her journey…such a brave fight. God bless them all and prayers this gets the proper funding to find a cure soon!

 

https://www.instagram.com/reel/CpOVVcUApWd/?igsh=MWw2Z2p3dHU5c2w4NQ==

 

I’ve been following her since shortly after Celine’s SPS announcement, since this post specifically - https://www.instagram.com/p/CmNYJI-sXqb/?igsh=MW84cTRnNXptb2JuYQ== - and have learned a lot.

And by the way, she’s a Montrealer. Hopefully she gets to meet Celine one day.

 

Edited by scielle
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Posted

 

 

I’ve been following her since shortly after Celine’s SPS announcement, since this post specifically - https://www.instagram.com/p/CmNYJI-sXqb/?igsh=MW84cTRnNXptb2JuYQ== - and have learned a lot.

And by the way, she’s a Montrealer. Hopefully she gets to meet Celine one day.

 

Wow that’s awesome. I hadn’t seen this, thanks.

I hope she gets to meet Celine and they can bond and find comfort in each-others experiences with their fights.

Posted (edited)

Maybe it’ll get posted, maybe not, but she’s still in Boston and at the Bruins game in a box. Her security team is doing a good job keeping her whereabouts hidden.

https://www.instagram.com/reel/C4y7KqPRmaz/?igsh=MzM2OHdzbzFjYzA2

Here’s the air guitar!

https://www.instagram.com/reel/C4y-Yrsou5N/?igsh=OTZ4a3ByajZocnhk

 

Did you manage to get any more intel about what she was up to at Berklee last week?

Edited by scielle
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Posted (edited)

 

Sneaky sneaky…

You reported and disappeared … hopefully you can at least say we should be excited lol

Edited by Nmj
Posted (edited)
This might be a grim post, sorry if I offend anyone in advance: the fact that Celine is watching a good amount of hockey games might be an indicator that this is a dying woman's last wish: she is trying to create as much memories as possible with her children because she knows that her health is a ticking clock and if she knew that she is going to die tomorrow, a mother's last wish would be to spend as much time with her kids before she dies. It's not like they are watching Stanley cup kinda games, they are watching regular games that a few people watch yet you can see that she is trying to make it as special as possible for them by meeting the players in the locker room so that she makes it more exciting for them, a memory they will keep once she passes away. I really hope I am wrong and that documentary would give us hope for her full recovery. Edited by Mudo
Posted

This might be a grim post, sorry if I offend anyone in advance: the fact that Celine is watching a good amount of hockey games might be an indicator that this is a dying woman's last wish: she is trying to create as much memories as possible with her children because she knows that her health is a ticking clock and if she knew that she is going to die tomorrow, a mother's last wish would be to spend as much time with her kids before she dies. It's not like they are watching Stanley cup kinda games, they are watching regular games that a few people watch yet you can see that she is trying to make it as special as possible for them by meeting the players in the locker room so that she makes it more exciting for them, a memory they will keep once she passes away. I really hope I am wrong and that documentary would give us hope for her full recovery.

 

Jesus.

Or maybe she has more free time now and her kids happen to love hockey?

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EZRRIMBUMAEcL2n.jpg

Posted

 

 

Jesus.

Or maybe she has more free time now and her kids happen to love hockey?

 

Canadian woman at random hockey game. Hardly a shocker.

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Posted

Let’s not forget this is a woman who once tried to buy an NHL team.

RC played travel hockey for a number of years, presumably the twins do to.

And Celine’s first crush was a hockey player (Sylvain, was it?)

This isn’t some new-found hobby.

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