Céline has Stiff-Person Syndrome

[Dancing_Queen]

My thoughts are with Céline's kids as well. RC saw his father lose a battle against a long illness, so I can only imagine how scared he must be right now. The two situations may not be the same entirely, but I imagine he's re-living some of that trauma right now.

[Nmj]

“ I’m staring in the face of something new, you’re all I’ve got to hold onto… So courage, don’t you dare fail me now.”

[nuts2you]

one thing that seem so odd , is I wonder if Rene Family has reached out to her, Or do they still talk to her , or do the rest of celine family still talk to her as well

[Charles]

Scott Newsome from John Hopkins Center on an interview about Celine’s diagnosis:

[LukeD]

I have been listening to her music on Spotify non stop the past couple days. It is as if it helps me stay connected with her. I noticed her numbers have gone up as well, so more people must be on the same page as I am. I read on UKMIX Forum that MHWGO, Happy Christmas, TPOL, BYLM, IA, IACBTMN, got over 100k streams each yesterday. Edited December 11, 2022 at 08:39 AM by LukeD

[Nmj]

I have been listening to her music on Spotify non stop the past couple days. It is as if it helps me stay connected with her. I noticed her numbers have gone up as well, so more people must be on the same page as I am. I read on UKMIX Forum that MHWGO, Happy Christmas, TPOL, BYLM, IA, IACBTMN, got over 100k streams each yesterday.

 

It’s strange how her lyrics have new life again…. “Perfect Goodbye” is emotional to listen to right now.

[isurrender]

Yes, I'm sure they were. And if I knew her personally I'd send a private message, not an Insta post.

 

One doesn't exclude the other.

 

We don't know who knew about it before but I find it personnally very weird this situation where the prime Minister of Canada publicly came forward about it but none of her inner circle ( or supposed to be) did.

 

One would imagine that at least some would. It's like they all gathered and agreed not to. This is not possible and makes me buy the isolated situation she would be in.

 

Also, she only hinted at her sons, her doctors and her fans on her message.

 

No word about family and friends. Such statement generally includes something like "I'm surrounded by the love of my family and friends who are there to support me and help me get better'

[Dancing_Queen]

one thing that seem so odd , is I wonder if Rene Family has reached out to her, Or do they still talk to her , or do the rest of celine family still talk to her as well

 

Well, it's clear she doesn't speak to Claudette 😉

To be fair, I think Céline only got her diagnosis around September or so. So until then, Claudette's speculation may have been based on what Cëline's family believed at that point.

 

But Anne-Marie probably knew, as Marc Duprez said they were in regular contact.

Edited December 11, 2022 at 11:24 AM by Dancing_Queen

[Dancing_Queen]

 

One would imagine that at least some would. It's like they all gathered and agreed not to.

 

Eric Tewalt (sax guy) has been liking dozens of Cëline tweets. Judy Kang (violin) also liked the insta post.

 

Barnev, Elise and Dawn are barely active on social media anymore, they haven't posted in ages. Same for Philippe, Jenny etc. The big days of Instagram are over, a lot of people left.

 

Dee doesn't mention or follow Céline anymore, but it does seem they are still in contact (she photographed the elephant pictures earlier this year). And with Pepe, there seems to be some drama for whatever reason.

 

A lot of people with a chronic illness self-isolate because they are embarrassed, don't want to be pitied etc. I hope Céline's message was a first step of her re-entering the world. She is such a social creature, so she must've felt so lonely 😔

[felicia]

Barnev’s reaction is in this article 😉

 

https://www.journaldequebec.com/2022/12/08/ca-nous-fait-mal-au-cur-un-choriste-de-celine-temoigne

[Chantemoi]

Barnev’s reaction is in this article 😉

 

https://www.journaldequebec.com/2022/12/08/ca-nous-fait-mal-au-cur-un-choriste-de-celine-temoigne

 

” The famous last time that the members of the team were able to see Celine Dion, it was in December 2021, when she announced to them in the heart of the rehearsals of her new show in Las Vegas that the first performances were postponed “.

 

Well we know the shows were cancelled in October, not December, but assuming that was a simple mistake and the rest is true, her band hasn’t seen her in person in over a year.

 

[Katie]

I know, we all look for hope, and Good signs, anywhere we can find it!... Céline, All the Best to you!

 

[Overjoyed]

It’s strange how her lyrics have new life again…. “Perfect Goodbye” is emotional to listen to right now.

I feel the same. Last night i was hearing the Courage album, and so many songs has a new vision in lyrics now. Specially I was touched by "I Will Be Stronger" (especially that "it's not the end"), "Perfect Goodbye", "Courage", "Say Yes"...

And gives me some hope tunes like "The Hard Way" or even

"Soul"...

[scielle]

My thoughts are with Céline's kids as well. RC saw his father lose a battle against a long illness, so I can only imagine how scared he must be right now. The two situations may not be the same entirely, but I imagine he's re-living some of that trauma right now.

 

I’ve been thinking a lot about that, too. I know he’s lucky in that he never has to work a day in his life. But money doesn’t solve everything, certainly not the important things. This is a lot for him to handle.

[jpatdeleon09]

So, this is what it looks like when you have SPS

 

[scielle]

Yeah… everything I’ve seen is horrid. Just breaks your heart.

 

Of course it manifests differently in different people, and everyone responds to treatments differently, so finding the best one for a given individual is trial and error. It’s so unfathomable to realize this is Céline’s new normal.

 

I just listened to two new interviews with Denise Bombardier and Joselito Michaud. Both of course known Céline well and have interviewed her extensively. Both extremely saddened she’ll never be the same again. 😞

 

Denise also mentions having been contacted for that new French biography that came out. She didn’t participate but basically called it BS, as did Joselito.

 

 

https://www.journaldemontreal.com/2022/12/08/celine-dion-arretez-de-dire-que-cest-de-la-maladie-mentale-dit-joselito-michaud

 

 

 

[PuraVida]

Being close to the very best hopsitals seems critically important. But the biggest importance, seems to me, is how good your specialists are. I wonder if she is working with Las Vegas specialists who are recruiting outside help as well. Online it showed me that no Nevada hospitals are natonally ranked for any specialities.

[Alex_Incognito]

She has a private jet. She's very fortunate that she has her hard-earned money because this is going to be the biggest help she has.

[smw]

I know, we all look for hope, and Good signs, anywhere we can find it!... Céline, All the Best to you!

 

 

This was comforting to watch.

[Overjoyed]

This was comforting to watch.

Apparently, this woman seems to has a "normal" life. Yes, medicated -like most of everyone in world-, but alive and with the abilities to keep on with her normal life like every day. I hope that Celine has the same results and this horrible disease be resolved just with some pils...

[PuraVida]

Perhaps Celine will relocate, if for a brief period, in order to recieve the highest quality treatment and info about her case.

[scielle]

 

Apparently, this woman seems to has a "normal" life. Yes, medicated -like most of everyone in world-, but alive and with the abilities to keep on with her normal life like every day. I hope that Celine has the same results and this horrible disease be resolved just with some pils...

 

Well, seems it really depends on the individual case. Seems some can function at 60-70% of their pre-SPS normal, others are bed-bound, or rely on walkers and wheelchairs, and have to constantly avoid triggers like sound and light (clearly impossible for a performer…)

 

I started following Alexandra Stamatopoulou - she was diagnosed at 14 and uses a wheelchair, but turned her aqua therapy into Paralympic swimming.

https://instagram.com/alexandrastamatopoulou?igshid=YmMyMTA2M2Y=

https://www.paralympic.org/alexandra-stamatopoulou

 

 

Edited December 11, 2022 at 09:53 PM by scielle

[anewdayhascome]

I am surprised that Hopkins seems to be the best place to treat and from what this professor said it's clear they know nothing about Celine's case so she hasn't been treated there... Maybe she should move there or to Florida... Vegas doesn't seem to be the best place on Earth to treat it for sure...

[incognito]

I am surprised that Hopkins seems to be the best place to treat and from what this professor said it's clear they know nothing about Celine's case so she hasn't been treated there... Maybe she should move there or to Florida... Vegas doesn't seem to be the best place on Earth to treat it for sure...

 

They wouldn’t be able to divulge if they knew about her case without her consent even if they did, in fact, know about her case.

[Alex_Incognito]

Oh my god. Fans now giving input on where she should live. There is no end.

[CourageCeline]

If sound is something which SPS patient is sensitive to, then Celine is surely not in Las Vegas.

[jolo87]

If sound is something which SPS patient is sensitive to, then Celine is surely not in Las Vegas.

 

I'm sure doctors are either coming to her or she's being treated in LA.

[Nmj]

If sound is something which SPS patient is sensitive to, then Celine is surely not in Las Vegas.

 

Have you ever been to Vegas? She doesn’t live in the casinos lol, I’m sure her mansion is nice and quiet.

[scielle]

I’ve felt bereft all weekend. How cruel for Céline to have this.

 

Have been trying to educate myself about the disease by following some SPS patients, and while symptoms seem to range greatly, as does response to treatments, this can be truly horrific.

And it doesn’t help that this video of an attack is set to ABM… https://www.instagram.com/reel/CmC5ZTxs9AT/?igshid=YTY2NzY3YTc= (trigger warning)

Some other videos I came across show extreme difficulty breathing during an attack because the airways and diaphragm spasm so much. Comments there from those who know the disease saying this is probably why she won’t be able to sing…

But Céline has already done so much in helping her fellow SPS sufferers feel validated. https://www.instagram.com/reel/Cl6VKTGJm6S/?igshid=YTY2NzY3YTc=

 

Interesting, saw some comments on LinkedIn from an SPS patient who saw Céline in rehearsal several years ago, and apparently she fell twice during one song in a way that made him wonder if she has this. Apparently significant weight loss is another early sign. So who knows, perhaps she has had this percolating for years and, like most with SPS, it took years to diagnose.

 

Edited December 12, 2022 at 06:30 AM by scielle

[Ukrfan]

I've felt bereft all weekend. How cruel for Céline to have this.

 

Have been trying to educate myself about the disease by following some SPS patients, and while symptoms seem to range greatly, as does response to treatments, this can be truly horrific.

And it doesn't help that this video of an attack is set to ABM… https://www.instagra...id=YTY2NzY3YTc= (trigger warning)

Some other videos I came across show extreme difficulty breathing during an attack because the airways and diaphragm spasm so much. Comments there from those who know the disease saying this is probably why she won't be able to sing…

But Céline has already done so much in helping her fellow SPS sufferers feel validated. https://www.instagra...id=YTY2NzY3YTc=

 

Interesting, saw some comments on LinkedIn from an SPS patient who saw Céline in rehearsal several years ago, and apparently she fell twice during one song in a way that made him wonder if she has this. Apparently significant weight loss is another early sign. So who knows, perhaps she has had this percolating for years and, like most with SPS, it took years to diagnose.

 

Terrible... I hope our Celine does not experience this :cry: